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Wednesday, March 2, 2011

2011 1p36 DSA Conference Registration is OPEN!


On behalf of the 1p36 DSA, we would like to welcome you to the 2011 1p36 DSA Family Conference and Retreat held in Minneapolis-St. Paul. For the past four years, we've welcomed new and old families with members who have 1p36 Chromosome Deletion to gather in learning new information, share our stories and spend time together. This year, we invite you to get away with us as we meet on the beautiful campus of Bethel University in Saint Paul, Minnesota on the shores of Lake Valentine. Located just 20 minutes from both downtown St. Paul and Minneapolis, 25 minutes from MSP International Airport and 30 minutes from the Mall of America, we'll enjoy the comforts of the city and the quiet retreat of Bethel's 245-acre campus. You might notice things look a little different this year. First, we're pleased to offer an "all-inclusive" style retreat complete with lodging, meals, registration fees and activities. You'll find a blend of dynamic speakers with topics ranging from advocacy to education, ideas for adaptations and encouragement to face the daily challenges along with times to relax and enjoy being with our "1p36 Family". Be sure to explore the links to find detailed information on registration, conference details and more about the area. We look forward to "retreating" with you in the Land of 10,000 Lakes!


Sincerely,
Beth Hegney and Heather Antoine
2011 1p36 DSA Conference and Retreat Co-Hosts



For more information and to register please visit www.1p36dsa.org/2011conf .

Tuesday, March 1, 2011

We Need Your Photos!

1p36 Deletion Support & Awareness (1p36 DSA) is working on new video and promotional materials.  We need your photos!  If you have a high quality digital photo of your child with 1p36 Deletion Syndrome that you would allow 1p36 DSA to use for promotional and/or educational purposes, please email it to c.daggett@1p36dsa.org.  

Photos may be used for brochures, flyers, newsletters and other print material as well as on the 1p36dsa.org website or the 1p36 DSA blog.

Types of photos we are looking for:

All ages of 1p36 individuals
Close Ups
Candid Shots
Family photos
Baby photos
Active shots
Photos of 1p36 individuals receiving medical treatment either in hospital or clinic.
1p36 DSA conference photos


Small Print:
By submitting your photo(s), you agree to allow 1p36 DSA to use the photo(s) in digital and print materials for the purpose of promoting 1p36 DSA and to increase awareness or provide education of 1p36 Deletion Syndrome. Permission should be obtained by all subjects in the photo.   All submitted photos may either be used, not used or may be be used at a later date at the discretion of 1p36 DSA.   If you wish to place restrictions on how the photo you have submitted is used such as a time limit or a preference for print or digital media, please specify your wishes in your email when submitting the photo.

Please email c.daggett@1p36dsa.org if you have any questions.

Thank you for supporting 1p36 Deletion Support & Awareness!