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Monday, June 13, 2011

Dr. Hopkin of Cincinnati Childrens Hospital to speak at the 2011 Conference!

We are very excited that Dr. Robert Hopkin, Director of the Genetics Residency Programs at Cincinnati Children's will be the keynote speaker at the 1p36 DSA conference in July! 

From Dr Hopkin's Bio:

Robert J. Hopkin, M.D. is an assistant professor of clinical pediatrics at Cincinnati Children's Hospital Medical Center. Dr. Hopkin graduated from the University of Nevada Medical School. He completed residency and chief residency in Pediatrics at the Phoenix Children's Hospital, Maricopa Medical Center Combined Residency Program. His training in Medical Genetics was completed at Cincinnati Children's Hospital Medical Center.

The majority of Dr. Hopkin's time is spent in caring for patients with genetic disorders. He participates in clinics from Fetal Care to Adult Genetics. He is also actively involved in education of health care providers regarding the application of genetics for patient care. Dr Hopkin has participated in a number of clinical trials and is a member of American College of Medical Genetics Committee on Therapeutics. He has participated in natural history studies on Fabry disease, Pompe disease, velocardiofacial syndrome, Pierre Robin sequence, Neurofibromatosis type I, and several other genetic conditions. The unifying principle in his research interests is application of scientific knowledge to improve outcomes for patients afflicted with genetic disorders.

Cincinnati Children's Hospital has created a very helpful and information packed brochure on 1p36 Deletion Syndrome.  Click Here to check it out!

We hope to see you at the conference as well so don't forget that June 15th is the last day to register!

Go to the 2011 1p36 DSA Conference Site

Wednesday, June 8, 2011

Time is running out to register for the 2011 Conference

Its hard to believe that its only 6 weeks until the conference!  June 15th is the last day you will be able to register for the 2011 1p36 Deletion Support and Awareness Conference in Minneapolis/St. Paul!  This year's conference is shaping up to the best ever and we don't want you to miss it.  Check out the preliminary agenda to see whats in store http://www.1p36dsa.org/2011conf/agenda_temp.php.

We've changed the conference a bit this year to make it more affordable and to make it more of a retreat for our 1p36 families.  We will be staying and meeting on the beautiful Bethel University Campus, only 20 minutes from the downtowns of both St. Paul and Minneapolis.  A bonfire, nature walk and a family dance are all on the agenda!  To get more particular info about the accomodations and special considerations, please check out the Conference FAQ.

So get to registering and we can't wait to see you there!!! 

Click Here to Register for the 2011 1p36 DSA Conference!!!


If you have questions about the conference, please email us at info@1p36dsa.org.